Bethan, 26, and husband Kieron were first given the option to terminate the pregnancy, before they learned about the operation. Until now the procedure has only been carried out in Belgium, but Bethan - who is due to give birth in April - is one of a handful of mums operated on by a team of Belgian and UK surgeons in London. A routine 20-week scan showed Bethan, a nurse, her unborn baby's head was not the right measurement.
She was sent to Broomfield Hospital in Chelmsford, Essex, where the baby was diagnosed with spina bifida, a condition where a baby's spinal cord does not fully development in the womb, which can affect the child's mobility. She said: "Our midwife made an appointment in London. Fast forward 48 hours, we were in London having scans on her head and spine.
"With that we were told our little girl had spina bifida. We were offered continuing pregnancy, ending pregnancy or a new option called fetal surgery - fixing her before she is born. We had to do it. We also had to meet some seriously strict criteria.
"Baby and I went through amniotic fluid tests, MRIs and relentless scans. We got approved and we planned for surgery. Our lives were such a rollercoaster for the next few weeks."
The journey took the pair and their loved ones through fetal repair for spina bifida at about 24 weeks into Bethan's pregnancy.
Specialists from University College Hospital Great Ormond Street Hospital in London played a key role in the treatment that Bethan was only the fourth mother in the UK to receive. She said: "I had the most recognised surgeons from around the world from University College London Hospital and Belgium looking after me."
The surgery involved removing the baby from Bethan's womb and repairing the spinal cord so the baby has a greater chance of a normal life. The baby was then placed back in Bethan's womb for the remainder of the pregnancy. Thankfully, Bethan said the operation was a success.
Bethan, from Burnham, said: "Sadly 80% of babies in England are terminated when their parents get told their baby has this condition.
"It's not a death sentence. She has the same potential as every one of us. Yes, there are risks of things going wrong but please think more about spina bifida, it's not what it used to be.
"I feel our baby kick me day in and day out, that's never changed. "She's extra special, she's part of history and our daughter has shown just how much she deserves this life."
